Nanny sent the kids their own Sonicare toothbrushes for Christmas and I didn’t think that Grace would like hers because it’s quite a strong vibration. Because we find tooth brushing difficult and brush her teeth through much fighting and chasing her head around, I tried the Sonicare and to my surprise, she just laid there...
Author Archives: elizabethhalford
Grace’s specialist called last night and asked to come over this morning (so naturally, Steven and I were up till 1am cleaning!) She’s so so lovely and she came over because she hadn’t met Steven at the initial diagnosis appointment because he was at Jack’s school nativity show. We talked about lots of things and...
{If you’re going to read this post, especially comment on it, please don’t skim or read between the lines. I have very carefully poured over each and every word} Lots of people have been very encouraging and sharing their feelings that they believe Grace can and will be healed of Rett’s. In the natural, this is...
Originally posted Dec. 17th, 09 We were summoned to the hospital where we met the specialists who have been caring for Grace who sat me down. It was kind of like a movie – me on one side, them on the other. They very plainly just said “Grace has Rett Syndrome” and then we proceeded...
Originally posted Dec. 16th, ’09 Tonight just before jetting off to a Christmas party, the hospital Dr. finally called. Just as he said he would if there was a problem found in her genetic blood tests. I immediately knew what he was about to say and then he said it: the genes are positive for...
Originally posted Dec. 9th, ’09 It’s been a few days so incase anyone is wondering about new developments, there aren’t any MRI is on Friday We’re waiting for the results of the genetic blood test any day now Waiting for our neurology appointment to come through in the post Waiting to be contacted by the...
Originally posted nov. 30th, ’09 We’ve been getting loads of love and phone calls from friends and family about Grace’s big appointment today so I’m hurrying and writing an update so we don’t have to tell the same story a billion times Today we met the consultant (that’s British speak for Specialist) who took an...
RECENT POSTS
READ MORE
