Finally MRI day happened. After 3 previously failed attempts (vomiting, snowed in, etc etc) Grace got her much needed MRI. She was a trooper and didn’t whine until coming out of sedation. Not even when she missed her breakfast due to fasting since dinner the night before. There was a scary moment, though, when the...
It’s been a while! Some bullet points to keep you updated: Grace has started her MDA (multiple disciplinary assessment) which is two weeks with occupational, physical and speech therapists and then in two weeks, we will have a feedback meeting which will include the therapists and her doctors. This is where they all tell us...
In my career as a photographer, I write on the subject for DPS. I published this yesterday and it has had overwhelming response: {Shoot to Live – What do Your Photos Teach you?}
I was standing at the microwave heating Grace’s food and I realised something: I was holding her on my hip with one arm and she felt really solid and strong, not floppy and falling out of my arms. How long have I been able to hold her like this without realising it? She felt properly...
Grace is still only eating baby food and it has to be almost completely pureed. She chokes on anything chunky. So day after day, I try to keep things interesting and not spend my entire existence making separate food for Grace so here are some things I’ve learned: Whenever I make us a dinner that...
Granddad gave Grace this Blossom Farm Cot Light Show from the ELC toy store. It took a few days to remember to get the size C batteries but when we strapped it onto her cot the other night, she went wild with excitement which doesn’t happen very often. She was smiling, giggling and waving her...
