Grace’s birthday cake evening was miraculous! She reached out and fed herself her entire cake which was her first purposeful hand movements in nearly 4 weeks. It mostly ended up in her lap because she missed her mouth but I was absolutely amazed and blessed by this leap she made. Her birthday video is {HERE}...
Originally posted Nov. 24th Today is Grace’s birthday and I’m full of mixed emotions. I’m absolutely thrilled and in awe that she could possibly be one already and sad at the state she is in. She doesn’t play with toys or even know what they are, she doesn’t get wrapped up (pun intended!) in shiny...
Originally posted Nov. 21st We got to the hospital yesterday for Gracie’s MRI and the anesthesiologist decided to reschedule it for another day. Oh, how I cried! But I know that this happened for a reason. This morning has been a sad one for me Grace has been trying to touch my face when I’m looking...
This is a version of our first post on our family website when Grace first began showing signs of Rett’s. We didn’t know at the time what was going on. _______________________ Everyone has been asking exactly what happened to Gracie so here I am finally coming out and writing it so everyone will know. We’ve...
