“I have only one thing to do and that’s to be the wave that I am and then sink back into the ocean.” -Fiona Apple This one day about 10 months ago…I was in Lulworth Cove. It was an extremely cold, windy day. Very few tourists and they’re usually there no matter the season. I...
Author Archives: Grace for Rett
“To beg God for healing is to say we have more compassion than He does.” The hubs and I were on TBN Meets with our friend Leon Schoeman talking about a variety of things including how we come to terms with disability and our Christian faith. Oh, and if disability doesn’t float yer boat, Steven...
Well this explains a lot. About a year ago we first started noticing signs of puberty in Grace. Ya know…hair down there. Underarm issues. Little booblets (not a technical term). But honestly, the most perplexing thing has been the emotions. Ooooh the emotions. Lots of crying at night for no known reason. Still don’t really know,...
Grace has the most spectacular carer/nanny, Anna. She takes Grace to her church on Sundays and recently, came back with this little story of triumph for us. It’s bittersweet and you’ll see why… Grace saw a little friend at church who was in her class at school last year. He (innocently) said to her something...
(Just when you think you’ve seen it all) There’s always something new around the corner when you have a non-ambulant kid. But first a little story to get us going: Once upon a time (the day before we went to Florida for Christmas), we noticed Grace’s left leg wouldn’t straighten without her shaking and getting...
Tomorrow, Grace turns seven. Seven seems like a really cool number to me. Seven days in the creation story. Seven deadly sins. Seventh Heaven. Seven seas. Seven continents. Seven colours in the rainbow. Seven days in the week. Seven dwarfs. Some people are actually named “Seven” (and I, for one, am hella jealous of people with...
It seems that people must be Googling about how to photograph girls with Rett Syndrome, so here’s my answer to a recent email inquiry on the topic. So many families with disabled children avoid the photographer because it can be a really disheartening experience. I once had a newspaper photographer come to photograph Grace and...
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