It happened so fast. And I realized that my entire life could completely change in a split second. We were visiting friends for a week in Yorkshire and having a great time talking and laughing in the kitchen. I was feeding Gracie a bottle and, when she was finished, I turned to put her in...
Every day, I get surprised by some new feeling or difficulty I didn’t expect. I find myself avoiding certain events, opportunities or conversations and upon reflecting back on them, realise that I’ve done it subconsciously. For example, it’s been a very long time (probably 7-9 months) since I’ve taken photos of Grace. I’m a professional...
It’s becoming a 5am date for Grace and I. I stumble to her room out of a dead sleep, woken by her desperate plea for someone to pleeeeeease come save her. And before I even open the door, I can smell the vomit. Why does it happen at 5am? I have no idea. It’s been...
You may remember last month the post about our friend who shaved her head to raise money for Rett Syndrome research. She passed away after a very short time of pain and suffering from cancer. Her funeral is on Friday. Thank you Elaine. I really can’t believe you’re gone. I don’t think I’ve really even...
Finally MRI day happened. After 3 previously failed attempts (vomiting, snowed in, etc etc) Grace got her much needed MRI. She was a trooper and didn’t whine until coming out of sedation. Not even when she missed her breakfast due to fasting since dinner the night before. There was a scary moment, though, when the...
Originally posted Dec. 16th, ’09 Tonight just before jetting off to a Christmas party, the hospital Dr. finally called. Just as he said he would if there was a problem found in her genetic blood tests. I immediately knew what he was about to say and then he said it: the genes are positive for...
Originally posted Dec. 9th, ’09 It’s been a few days so incase anyone is wondering about new developments, there aren’t any MRI is on Friday We’re waiting for the results of the genetic blood test any day now Waiting for our neurology appointment to come through in the post Waiting to be contacted by the...
