Category Archives: Hard Days

MRI Rescheduled }:( New Frustrations

Originally posted Nov. 21st We got to the hospital yesterday for Gracie’s MRI and the anesthesiologist decided to reschedule it for another day. Oh, how I cried! But I know that this happened for a reason. This morning has been a sad one for me  Grace has been trying to touch my face when I’m looking...

The First Signs…

This is a version of our first post on our family website when Grace first began showing signs of Rett’s. We didn’t know at the time what was going on. _______________________ Everyone has been asking exactly what happened to Gracie so here I am finally coming out and writing it so everyone will know. We’ve...

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