Author Archives: Grace for Rett

Everything about Grace’s Spinal Fusion Surgery

In 2015, I first started asking Grace’s doctors in the UK whether they thought she was developing scoliosis. They took the picture on the right and said no. Knowing what I know now, she actually already had quite a significant curve. Flash forward to moving home to Florida and meeting her orthopedic surgeon at Nemours...

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I’m not strong. I’m battle hardened.

I didn’t become “strong” because I wanted to; I became strong because I had to. A woman I admire on Instagram, Jamie Lee Finch, said something today that hit me in the feels. “I told my therapist this week that if I’m never called “strong” again for the rest of my life it will be...

Divorce in Rett syndrome families

Does having a kid with Rett syndrome increase the likelihood of divorce? I think I forget sometimes that there are readers here who are actually following our journey and care about our life with Grace and Rett syndrome. I can be guilty of only coming on here to share the really big stuff. But I’ve...

The public shaming of Myka Stauffer

If you go to Myka Stauffer’s Instagram account, comments are turned off on her more recent posts. And it’s no wonder she’d do this. She’s facing the public shaming of a lifetime. Sponsors are dropping her although this scandal has seen her gaining 20,000+ new Instagram followers in the last 24 hours and a YouTube...

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