The disease ALS (1 in 50k births) is FIVE TIMES more rare than Rett (1 in 10k births) and donations to the ALS Association went up by $20m a year after a viral awareness campaign we all know as the ice bucket challenge.
Recently, a major Rett charity made the statement that they are “not fans” of awareness month and you can follow ? THIS LINK ? for the most convincing data you will ever need for why awareness month is the most important month on the Rett syndrome calendar.
It’s what we in marketing would call a tent pole event.