Well this explains a lot. About a year ago we first started noticing signs of puberty in Grace. Ya know…hair down there. Underarm issues. Little booblets (not a technical term). But honestly, the most perplexing thing has been the emotions. Ooooh the emotions. Lots of crying at night for no known reason. Still don’t really know,...
Finally! We have found a way to describe the mental disability side of Rett. Obviously, “mental retardation” doesn’t apply to Rett syndrome. Neither does “cognitive impairment” nor “learning disability”. Yesterday when Grace was having an eye gaze training with Hector from Tobii, he said, “Obviously, eye gaze is more difficult for Grace since in addition...
I seem to remember an episode of the Simpsons where Homer was amazed at the invention of feeding tubes so he could eat without any effort. Anyone else remember that? We went to Grace’s surgeon appointment yesterday and she immediately started talking about which tube Grace would have. My head was spinning. I was like,...
