Post by Grace for Rett Syndrome.
Category Archives: Better Days
Note: there’s video in this post. If you can’t see it, click here. Oh my goodness the internet atonishes me sometimes. I posted a picture of Elijah’s letter to Santa on Facebook last week and this Father in Missouri got a hold of it and read it to the congregation. There used to be a...
“…there are so many variations, interpretations and individual experiences of bringing children into and up in the world, that giving birth in itself is not a unifying experience.” –Sara Bran It’s so true of motherhood that simply giving birth doesn’t make us in the same tribe. I found that when I was home educating, even being...
When Grace was first diagnosed, we believed she was cognitively impared (aka “retarded”). And, you know, I was ok with that. I thought “That’s cool. She’ll just get pampered and loved and taken care of forever and she’ll never know the difference.” To some, the idea of your disabled child being mentally impared as being...
Man…Elijah’s love for Grace is fierce. He is soooo in love with her. He wrote this poem yesterday and emailed it to me: O Gracie may O Gracie may you wear a DMO all day your code is r168x you’re a female that’s your sex you’re more powerful than a mecharex you’re a female that’s...
Ok so it wasn’t Grace’s wedding. But it felt like it. On Saturday, Grace was a bridesmaid in our friends Jake & Betsi’s wedding. Getting her ready, I thought this might be the only wedding she will ever be a part of, including her own. So I went all the way. Blush, Chanel perfume, painted...
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