By the way…who ever came up with the nickname for Rett girls “Silent Angels”? And who else out there laughs when they hear that? My angel is NOT silent. She doesn’t speak, but she sure does scream, screech and shout ‘BA BA BA BA’ when she wants her bottle! In fact, this week she’s discovered her screech. Most of you know the one. Because Jack did it for a whole year and drove everyone in our town insane.

It’s hard, though, because the initial reaction is to scold her or firmly say ‘NO’ with a disapproving nod. But how on earth can you say that to Grace? We want her to communicate. But if she keeps this up, when there’s a cure we’ll be too deaf to hear her voice! lol.