Category Archives: Symptoms and Effects of Rett

Barf Scarf

  Grace has weeks where she throws up multiple times in the day and night. It’s a mystery. She’s happy, chatty, no fever, not sick and then -BLEEEEEEH!!!!- it’s, like, EEEEEEEEverywhere. The other day, she threw up in the car on a roadtrip and we had no choice but to drive the next hour until...

Rett Syndrome and Breathing Abnormalities

Note: I will be referencing The Rett Syndrome Handbook in this post. I highly recommend every Rett family to have this book in their home. It’s a whopping 500+ pages long, written by the amazing Kathy Hunter, founder of IRSF which has now put $40,000,000 into research to cure/treat Rett syndrome. This book has been really...

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