“This is what we hear when you pray for a cure. That your fondest wish is that we will cease to be and that strangers you will love will move in behind our faces.” -Jim Sinclair Do I wish Grace didn’t have Rett? Is depends on which day you ask me. One day, I’ll say...
It’s pretty late. I actually went to bed at 8 but apparently I didn’t tell the mommy fairies that I was punching the clock for the night because they’ve kept me up till midnight with boys in the bed and Grace requiring a much needed yogurt snack at 11. Who doesn’t love yogurt in the...
It’s hard to decide which of my blogs to post this poem on. It can easily apply to so many audiences, so many situations. But today, I’m finding it more closely resembles what it takes to live a life like ours and be able to stand before the Lord someday, absolutely certain that we gave...
I just wanted to throw a little note out there on this blog that these posts are therapeutic and extremely helpful to other RS parents. I get lots of messages from people trolling the web looking for information and happy to find something with heart. I follow lots of other RS mummy blogs and we...
Grace had her 6-monthly appointment today with the main consultant paediatrician who diagnosed her last year, Dr. L. She is the most gentle, lovely, kind person we have dealt with in this whole process and we look forward to seeing her every time. We know Grace has had remarkable improvements in her life recently. She’s...
This week, it has been a year since we took Grace to the hospital after she had so drastically changed from a mentally present, vivacious little girl into a limp, disinterested newborn. Staring at her hands, ignoring her own feet, crossing her eyes and head tremors. It was all very scary, especially when we were...
{If you’re going to read this post, especially comment on it, please don’t skim or read between the lines. I have very carefully poured over each and every word} Lots of people have been very encouraging and sharing their feelings that they believe Grace can and will be healed of Rett’s. In the natural, this is...
