Author Archives: elizabethhalford
It’s becoming a 5am date for Grace and I. I stumble to her room out of a dead sleep, woken by her desperate plea for someone to pleeeeeease come save her. And before I even open the door, I can smell the vomit. Why does it happen at 5am? I have no idea. It’s been...
If you remember back a few months ago, we found that Grace has the Rett mutation known as R168X. Gracie’s friend Amy also has this mutation and her mom is such an articulate writer and keeps a wonderful blog about their lives with RS. Anyway, she had a particularly interesting post today about Amy &...
Grace finally received delivery of her new standing frame. Our dining room is now a landing pad for wheelchairs, eating chairs, standing frame, car seats, and tumbleforms. We should really have dining room insurance incase someone breaks their neck upon entering our house. The standing frame is just what it sounds like. A device you...
You may remember last month the post about our friend who shaved her head to raise money for Rett Syndrome research. She passed away after a very short time of pain and suffering from cancer. Her funeral is on Friday. Thank you Elaine. I really can’t believe you’re gone. I don’t think I’ve really even...
Wow what a touching day we had yesterday. Last week, I posted to explain how our friend, Elaine, who has cancer and will begin radiotherapy this week, decided to lose her hair on her own terms and raise money for Rett Syndrome in the process. Leading up to the ‘shearing’ party, The News ran an...
The following was written by our friend Elaine before she died of lung cancer. Her memory lives on because she made her husband promise to give to Grace’s cause every year 🙂 Way to go, Elaine! Hi there and welcome to Grace’s website. My name is Elaine Doxey and I am 62 years old. I...
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