A snapshot of life with Rett Syndrome
When Grace was born she had a secret
the 'bee chair'
'gaiters' to help her with her arms
Too tired to lift her head (but still smiling)
45 minutes waiting for this shot...
...the rest of them cross-eyed (but so stinkin cute!)
A sleep system in her crib
her crossed eyes used to make me cringe now they make me smile
grinding teeth (still makes me cringe)
She used to to this...
...now she just does this
She used to do this
...and now she does this (for only about 5 seconds)
She smacks her lips to say 'yes'
She's been a brave little trooper...
...more than once
But no matter what, she's always got the brightest smile on her face